Madris, spain, 05/03/2020.- Queen of Spain Letizia, together with the Minister of Health, Salvador Illa, presides over the central act of World Rare Disease Day, which is celebrated with the motto "Grow with you, our hope". In the city of BBVA in Madrid with the assistance of the president of the Congress, Meritxell Batet; the Spanish Federation of Rare Diseases (Feder in Spanish), Juan Carrión, and that of BBVA, Carlos Torres.On Feder's 20th anniversary, the queen wanted to recognize the work of the 368 associations that make up the federation for her "tireless" task to raise funds with which
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dpa picture alliance / Alamy Stock PhotoImage ID:
2B3X2R8File size:
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2304 x 3456 px | 19.5 x 29.3 cm | 7.7 x 11.5 inches | 300dpiDate taken:
5 April 2019Photographer:
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Madris, spain, 05/03/2020.- Queen of Spain Letizia, together with the Minister of Health, Salvador Illa, presides over the central act of World Rare Disease Day, which is celebrated with the motto "Grow with you, our hope". In the city of BBVA in Madrid with the assistance of the president of the Congress, Meritxell Batet; the Spanish Federation of Rare Diseases (Feder in Spanish), Juan Carrión, and that of BBVA, Carlos Torres.On Feder's 20th anniversary, the queen wanted to recognize the work of the 368 associations that make up the federation for her "tireless" task to raise funds with which to finance the search for solutions to infrequent pathologies, which in Spain affect three million people, especially young people and children. It is these groups that have been demanding scientific research for years, which are those that "truly open the possibility, sometimes remote, but always hopeful" of achieving an improvement in the quality of life of those affected. "Twenty years in which you have changed the perception of Spanish society about what is a rare disease. Thank you all for continuing tirelessly in a battle that nobody can imagine, " | usage worldwide