(190301) -- BEIJING, March 1, 2019 (Xinhua) -- Ding Yuan, 22, diagnosed with fibrous dysplasia of bone, poses for a portrait in Beijing, capital of China, Feb. 26, 2019. Getting to know other rare disease patients gave Ding Yuan some thoughts on her perspective on how to accept the way she lives and how to live her life to the fullest. "Rare Hug," a Chinese drama on rare diseases, was staged at the Beijing Tianqiao Performing Arts Center Wednesday evening to mark the 12th Rare Disease Day, which falls on Feb. 28, 2019 under the theme "Bridging Health and Social Care." The drama was played
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Contributor:
Xinhua / Alamy Stock PhotoImage ID:
RTE17PFile size:
17.2 MB (459.1 KB Compressed download)Releases:
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2000 x 3000 px | 16.9 x 25.4 cm | 6.7 x 10 inches | 300dpiDate taken:
26 February 2019Photographer:
XinhuaMore information:
This image could have imperfections as it’s either historical or reportage.
(190301) -- BEIJING, March 1, 2019 (Xinhua) -- Ding Yuan, 22, diagnosed with fibrous dysplasia of bone, poses for a portrait in Beijing, capital of China, Feb. 26, 2019. Getting to know other rare disease patients gave Ding Yuan some thoughts on her perspective on how to accept the way she lives and how to live her life to the fullest. "Rare Hug, " a Chinese drama on rare diseases, was staged at the Beijing Tianqiao Performing Arts Center Wednesday evening to mark the 12th Rare Disease Day, which falls on Feb. 28, 2019 under the theme "Bridging Health and Social Care." The drama was played by rare disease patients in collaboration with their relatives. Assisted by two volunteer directors, the cast took part in a three-day workshop as well as rehearsals that lasted for two days, before presenting their real-life stories to the audience. Chen Meiping, one of the directors, has devoted herself to the public theatre and related arts since 2005. In late 2018, she worked with Yi'ou Wang, secretary-general of Illness Challenge Foundation, to come up with the idea of telling stories of rare disease patients with a collaborative drama. Before meeting the rare disease patients who volunteered to act in her drama, Chen was not so confident in the final result because they had only limited time for proper training. Chen was later surprised by the collaborating patients' readiness to perform and their desire to share their stories with others. "I am reassured by that desire, " said Chen. "It is as if they can act themselves out immediately after they are up on the stage." The other director, Liang Wanyun, had been worried that the patients were amateurs who had not ever performed in a real drama and not sure whether they could go through the acting training in just three days. Yin Yuanyue, a 29-year-old volunteer actress in the drama who is diagnosed with muscular dystrophy, called for increased social awareness of the rare disease patient group. "What I am seeking